Coryn's Crusade for Kids in Pain

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Donate now! Coryn’s Crusade for Kids in Pain raises funds to ensure TRUST can be rolled out to the many chronically ill pediatric patients and to support continued research for new pancreatitis treatments and pain relief. 

Coryn's Story

Coryn's Crusade for Kid's in Pain

Coryn’s story is as much about the journey to a diagnosis and treatment as it is about the chronic pancreatitis. Read More

 

In August 2009, Todd and Noelle Tower learned that their gentle, creative 8-year old daughter Coryn had both chronic and acute pancreatitis, a serious inflammation of the pancreas that can lead to permanent tissue damage, diabetes and chronic, severe pain. Her parents were left adrift, wondering where to turn for help for their aspiring dancer.

The Towers turned to BIDMC and Dr. Steven D. Freedman, a researcher and gastrointestinal physician who specializes in pancreatitis. Dr. Freedman made sure there was a plan for Coryn though his new program called TRUST (Together – Responsible – Understanding – Satisfaction – Thorough). This plan finally has Coryn on track to being pain free, and for the first time in years, her parents understand this illness and what to do about it.

Coryn’s Crusade for Kids in Pain raises funds to ensure TRUST can be rolled out to the many chronically ill pediatric patients and to support continued research for new pancreatitis treatments and pain relief.

Thanks to BIDMC and Dr. Steve Freedman, Coryn danced in her school's recital!

 

 

Coryn's Story

Coryn with Stuffed AnimalIn August 2009, Todd and Noelle Tower learned that their gentle, creative 8-year old daughter Coryn had both chronic and acute pancreatitis, a serious inflammation of the pancreas that causes digestive enzymes to attack and damage surrounding tissues. In patients with chronic pancreatitis, the inflammation does not heal but rather worsens over time, leading to permanent tissue damage, diabetes and chronic, severe pain. The diagnosis came as a result of an acute attack that landed Coryn in ICU for 6 days, and left Todd and Noelle adrift and wondering where to turn for help, uncertain about the best course of treatment.

Coryn’s story is as much about the journey to a diagnosis and treatment as it is about the chronic pancreatitis. As the family began dealing with Coryn’s pancreatitis, they came to the realization that our medical system and the doctor-patient relationship desperately needs to change, especially since Coryn had been dealing with undiagnosed pancreatitis since age 3. All too often doctors, particularly pediatricians, whisk in and out of patient rooms, making it easy to miss warning signs and look for the common diagnosis. 

It was at this point of desperation that the Towers found Dr. Freedman, a researcher and gastrointestinal physician with a specialty in the pancreas at Beth Israel Deaconess Medical Center in Boston. Dr. Freedman made sure there was a plan for Coryn. He helped put together a team of doctors interested in communicating ideas and putting together a thoughtful plan for Coryn’s treatment – both in the short term and long term.

This was accomplished through a new program Dr. Freedman was piloting with Dr. Mark Aronson, Naama Neeman, and their team called TRUST (Together – Responsible – Understanding – Satisfaction – Thorough). The goal of TRUST is to enhance the doctor-patient relationship and make patients and their families informed partners in their care. Fundamental to TRUST is having physicians explain what is known and importantly what is not known. In Dr. Freedman’s plan, doctors act as quarterback to find information and help patients and their families navigate through the complexities of the medical system. This plan finally has Coryn on track to being pain free for the first time in years. And for the first time her parents understand her illness and are armed with a plan so they can best help her at home.

Coryn's recitalCoryn’s Crusade for Kids in Pain is the Tower family’s effort to help other children and their families through the TRUST program and to continue pancreatitis research efforts. Funds raised for Coryn’s Crusade for Kids in Pain will ensure that the TRUST program can be rolled out to the many chronically ill pediatric patients so they might have access to the right resources, with like-minded physicians, and a treatment plan that involves the patient, family and physicians. In addition, funds will also be directed to continue research for new pancreatitis treatments and pain relief.

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